Patients with related diseases in the list of the first batch of rare diseases can submit application for assistance in Jingdong app, Jingdong health app and other channels after the diagnosis certificate is issued by the hospital recognized by the National Health Commission. After the examination and approval by the pain challenge foundation, the medical expenses incurred by the treatment of the disease according to the scientific treatment plan can be submitted for assistance. After the examination and approval, the patients can receive each treatment fee Public welfare assistance of up to 50000 yuan per year.
It is reported that children with minor and rare diseases, first-time patients, and families with low-income and rare diseases will receive priority assistance. The pain Challenge Foundation and Jingdong health will provide corresponding solutions according to the help seeking of patients with rare diseases in different scenarios, so as to help the rare disease groups to the maximum extent.
(picture of page of rare disease care center of Jingdong pharmacy)
At the same time, with the development and progress of society, the needs of rare disease groups in China are changing from the most basic treatment needs and physiological needs to the spiritual and social needs, such as education, employment and social needs. The rare disease care center of Jingdong pharmacy can provide an exchange platform for patients with rare diseases: patients can not only obtain authoritative guidance from professional doctors, disease science knowledge and medication guidance related information through the platform, but also share their own rehabilitation stories and medical experience, so as to fight disease and face life with a more positive attitude.
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